Sunday, February 4, 2007
A selection of Frost and Wren last night.
For the past two nights Wren has slept one three hour period. Sometimes these begin at 9pm so I miss part of it but its still a bit improvement on the 90 minute sessions he was having a week ago. Last night he slept 10-1am, 1.30-4am and then the bad grunty-snacking period until 7am. I don't think I slept after 6am. He also alarms me at night by dreaming and breathing very fast at times which makes me alert and sleepless.
This morning he seems okay. He nursed well in the night and didn't sweat at all and he woke smiley. I shall wait and see how he does today.
Anyway, the title of this blog relates to the book I am reading The Spirit Catch yous and You Fall Down about a Hmong refugee family with a sick child interacting with the US medical system. One section deals with the way they feel that compliance with medical advice is optional and routinely alter medication and administer the medications they like. While the book addresses the deeper issues of the cross-cultural misunderstandings I was thinking how I am as the patient or parent of a 'sick' child and whether I am totally obedient.
I find that I am not.
If there is an area in which I am not fully educated about the reason for a therapy or subscribe to an alternative I don't comply. An example is the iron supplement Wren is on. I suspect it is causing him constipation (he strains a lot when he is on it) and am also of the view that iron levels in babies are over-rated. However, I am concerned that he not be anemic in case of future surgeries so I have decided to administer his iron every second day. I will discuss this with our pediatrician but meanwhile I am quite happy to do what I think is best. I also didn't use the cortisone my doctor prescribed because I don't like cortisone but I took the prescription "in case" I changed my mind.
I wonder if I am atypical in doing things a bit my own way and how difficult this must be for doctors.