This got me thinking, and thus googling Shone's syndrome/complex and anomaly. These terms are used interchangeably for Wren's condition. I found a new blog about a boy wo is ten with Shone's. He has had 2 OHS. I also found a record of a survey of the medical literature:
"Louis, J. D., et al. - Conclusions: Long-term survival of patients diagnosed with Shone complex is excellent. Operative strategies for this complex group should be individualized. Mitral interventions may generally be deferred."
This sounded very encouraging. I stopped googling before I found something ominous. It made me realize that I am still very anxious about Wren's survival. I just wish our cardiologist would say something like that all the time. Long term outcome is EXCELLENT. EXCELLENT!!!!!!
I feel better already.