We have a follow-up appointment with Dr Lewin tomorrow. It is to discuss how Wren is doing and the continued turbulence in the arch and inflow-tract area. I have been reading about inflow tract obstruction (subaortic stenosis or sub-vulvular AS) and its not too great. It all requires OHS (open heart surgery) to correct it and its recommended not to leave moderate stenosis as the high blood velocity (indicated by turbulence) can lead to damage of the valve leaflets over time.
I am feeling dreadfully anxious and pessimistic.
To top it all I think Wren looks good physically but I want him to seem happy. Can a 6 week old seem happy? He smiles occasionally but they are those elusive first smiles that don't seem personally directed. He could almost be smiling at the ceiling or the curtains. I don't feel he is energetic or happy and alert as much as I expect. I know, its ironic that I want both sleep and not-sleep but I just want him to be normal and healthy and happy.
I read a post on the Babies with Heart Problems Board about a baby born on the same day as Wren. The poster wrote her baby is "smiling and cooing" - hoping this meant the defect is not severe. I can't say Wren is smiling and cooing. He looks around with interest but that's about it.
I will feel better if tomorrow is over and surgery isn't on the schedule.