As I indicated before, they did not do any ballooning. The obstruction is sub-aortic and supra-valvular. Dr Permut, the surgeon, did a mini-consult with Dr Lewin and Dr Jones and said a resection and patch of both areas is probably the surgery they would recommend.
The aortic valve is a few mm larger than the obstructions but may also need some "repair" during OHS.
They expect the OHS in fall - although Dr J said 6 months - I yr, Dr Lewin said sooner and both said "Fall" (independently). We have yet to see Dr L today.
Wren was very upset in recovery and they called me in to nurse and calm him. He is flushed, a bit swollen about the face but doing OK now after Josh got him to sleep. His voice is a bit raspy from intubation and he liked the popsicle and iced water.
More later, I am just rushing to get us lunch in the recovery room. Other snippets:
1) Dr Jones said that Wren's heart is under a lot of pressure and showing issues with diastolic function of the LV, still mild but hard to assess since his parachute mitral valve is causing some obstruction too (BAD). It may be mild but shows some increase in pulmonary pressures indicated blockage, mild stenosis but poor function due to leaflet tether. May need repair or work during OHS.
2) LV Pressures 150 during sedation ie 200 active. (BAD)
I better get back now. We will be getting a surgery consult in the week(s) ahead. It is strange to be back in this world. The whole "procedure" of the place is reassuring - if you have to be here at least it is routine for the professionals. Now on to the routine of mexican cheesy lunch.
PS. Ran into Izzy, Wyndi and Steven in the cafeteria. Izzy was very sweet eating bagel. We have ordered Wren applesauce, pudding and mac and cheese. I hope he has not woken yet - need some sleep before I get back.
1 comment:
I'm glad Wren is out and at least today went a little more as expected (the cath happened!). Sorry to hear some of the news isn't good. I have this gut feel we'll be in a similar spot with our son soon. See the card at the end of the month. Hope Wren is recovering okay. The kids are such troopers.
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