Wren had lots of improvement today. He got rid of tons of fluid (-100CC), opened his eyes a lot, 'lost' 2 central lines, had his catheter removed, his left-hand IV removed and had a feeding tube inserted.
He is still on C-pap and seems to need this to maintain his sats in the 90s and is also on two diuretics to help get rid of a bit more fluid. His pressures are a bit up but the mean arterial pressures are in the 40s-50s which are acceptable right now.
While everything else looked good I was beside myself with anxiety when his toe-temp slumped in the middle of the day - back from the high 30s down to 27 degrees. It was only the lower calf and foot area that was affected but after all the discussion about how the warming up was great I was completely terrified that this meant his heart was under stress. I asked to speak with the fellow and they promised to watch it but felt as an isolated measure it was not uncommon and not too worrying.
Thankfully, this evening after being held by Josh and me for MANY HOURS his toes warmed up to 34 degrees. I hope its still up in the morning.
His only other slightly emerging issue is periods of fast breathing. This could be some fluid in his lungs but no-one seems too worried by it as its isolated and when he is excited. No-one worried but me.
Meanwhile, most encouragingly, he is acting like a normal baby. He is obviously hungry and is likely to be fed through the nose-tube if he is stable overnight. He cries but can be soothed with his binky and rocking. He lies and looks around with interest even though his eyes are a little swollen.
I am going in again early tomorrow and will post a few new pictures in his "graduate" bed. He is now in a crib rather than under a heat lamp in a little table-bed as he was before. He has no heating and is just swaddled. If we have another day like this I may take a breath and feel a moment of peace.
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