Scoliosis in Heart Kids?

One of the best online communities for discussion of CHDs is the TCHIN List - called PDHeart. You subscribe and receive emails as singly or in a digest. The list is large and at times busy but I learn a great deal from other families, many of whom have older kids who have similar issues to Wren's. Of course, there is misinformation so I try and check our things which come up.

This week, an email came through my inbox about a girl who has had surgeries like Wren's - a thoracotomy repair of a coarc and a midline sternotomy for sub-aortic stenosis. She is now 14. Her mother shared that she has recently been diagnosed with scoliosis:

I took her to a Scoliosis doc on Friday, and they very calmly told me thatshe has non-rotational non-idiopathic scoliosis (10% upper and 20% lower in the
oppositedirection ) that's a result of her heart surgeries.

They told me that about 35% of the kids that have heart surgeries develop scoliosis.

I'm very frustrated! No one told me to watch for this! ... I have never seen this in anything I have read about CHDs, and...I feel that if I had known about this, we could have kept it from becoming this bad. [When] she goes back to her cardio ...I intend to ask about it then, esp.whether it really affects this many CHD kids. Its a specific kind of scoliosis - shifting out to the sides, not twisting of the spine.Apparently it has something to do with scar tissue restricting upwardgrowth of the spine.

I know that Izzy has scoliosis but I thought that might be something to do with Phaces, not OHS. I will be asking our pediatrician to look into this but meanwhile, has anyone else heard about this association?