- I have now obtained the package of Cath CD, Surgical opinions, clinic summaries and echo images needed for our referral to Dr Krabill. I hope she can make sense of them for us or at least cast her vote in the controversy.
- Dr Hanley's scheduler called and said that he had reviewed the two dates she suggested and felt that November 7th was a better fit for Wren's surgery. October 9th was a major case before his proposed surgery so it would not have been easy but November 13th was a less large one. I worry about November 7th because it is a Friday (less staffing over weekend) AND even worse, Dr Hanley goes on vacation for 5 days the following day. Is that even safe for Wren? I shall have to ask this at our phone consult next week. PLUS what if another critical case comes along? Do we get bumped for a week, get another surgeon? I do not like it, Sam I am.
- Bri called and said Dr Cohen can see us at 11.30am on the 16th
- Stanford called AGAIN to change our consult with Dr Hanley to 9.30am on the 18th. This is great because our babysitter will get here in time to watch Wren while we talk/listen.
I also read through Dr Hanley's recommendation in more detail and was interested to see his arguments for saving the valve. He says it is not very thickened, has normal motion and no regurgitation. He feels that it may be slightly obstructed by the LVOT obstructions close to it (above, in particular).
I like to hear these explanations. If it was a head-to-head save-the-valve surgery (and no Ross, looming) I would easily pick going to Stanford. However, it is not clear that he will be doing a Kono on the area - he mentioned "extensive myomectomy" - is this the same thing? Questions, questions.
