Wren has his cath tomorrow. We check in at 7.15am and his procedure starts at 8.30am. Sedation is somewhere in between.
I have just received the instructions for food, milk and clear liquids. He cannot have any solids or milk including breastmilk after 12.30am. He can have water, apple-juice,pedialyte or 7-UP until 4.30am and nothing after that.
7-UP at 4am?
No nursing after midnight?
F*ck.
Wren is not going to like this at all. He nurses at least twice between midnight and 8am and does not like 7-UP, water, juice or anything in a bottle at 4am. I mean, if its hot and he is really thirsty he will drink it any way but not otherwise.
I guess we will work it out but the woman who called us was an automaton without any empathy which left me with a bad taste in my mouth (or ear, rather).
I had better go out and get some apple-juice/7-up or other clear liquid in case he wakes at 4am.
Friday, July 25, 2008
Thursday, July 24, 2008
Quick update
Its Wednesday, I am tired already. I am trying not to get sick - its not anything serious but I have had painful sinus and ears for 2 days. Today Wren is grumpy - not acting sick really but his temperature was 100 when I took it, once. I doubt that is significant if not for the fact that I am feeling on the verge of something and he is seldom more than a day behind.
We had a new neighborhood cat visit us today and by chance met his owner who is a UW grad student and ... BABYSITTER! She suggested we call her if we ever need an evening babysitter. She lives over the back fence which would be super convenient.
I am feeling plump. I saw my reflection in a shop window and I had that bulge of flesh around the bra-strap on my back that signals "fatty" to my guilt.
I am contemplating a reactive dinner of salmon and vegetables to overcompensate for all the penne pasta in cream sauce that I nibbled on when Wren said "more muk NOW" instead.
Yawn.
How does the house get totally messed up in 24 hours. It was so pretty before Frost came home.
We had a new neighborhood cat visit us today and by chance met his owner who is a UW grad student and ... BABYSITTER! She suggested we call her if we ever need an evening babysitter. She lives over the back fence which would be super convenient.
I am feeling plump. I saw my reflection in a shop window and I had that bulge of flesh around the bra-strap on my back that signals "fatty" to my guilt.
I am contemplating a reactive dinner of salmon and vegetables to overcompensate for all the penne pasta in cream sauce that I nibbled on when Wren said "more muk NOW" instead.
Yawn.
How does the house get totally messed up in 24 hours. It was so pretty before Frost came home.
Sunday, July 20, 2008
Night, interrupted
We arrived home from the beach yesterday evening and everyone was happy to be home. We appreciate our Tivo, Wren was thrilled to find all his toys (and wanted to take every one out to re-possess it) and Frost was happy to find more birthday presents.
Happy 7th Birthday Frost!
However, I did not get a good night's sleep last night for the following reasons:
Happy 7th Birthday Frost!
However, I did not get a good night's sleep last night for the following reasons:
- We were woken around 3.30am by a cat trapped in the basement mewling. Josh got up and released the cat.
- I could not get back to sleep thinking about the news that my grandad died while we were away. He was 97. I did not hear the news (because, apparently, it is inappropriate to email this kind of information and nobody could reach me on the landline at the cottage). I managed to reach my cousin's wife Van in Australia and she told me that he had post-operative complications after a fall in which he broke his hip. My uncle managed to be with him before he died and a funeral is being held next Friday. My mother is leading a complex and long tour of Australian scientists and museum patrons in Namibia and I do not think she will be able to attend which will be hard for her.
- I had just got back to sleep around 4.30am when we were woken by a racoon coming in to eat cat food. We have recently installed a "racoon proof" catdoor with magnetic entry for the cats. It seems the racoons have learned to get in by tapping the door, catching the flap and lifting it up to get in (it is locked if you try and push it in but not swinging and lifting). Josh got up to chase them away.
- I could not get back to sleep worrying about Wren's upcoming cath and the news that Marin's surgeon told her mother [Marin had the subaortic surgery a year ago] the area had not grown post-surgery and that this meant a more aggressive approach was needed. I kept wondering what would be suggested for Wren and whether it would work.
- Wren woke to nurse at 5am. He slept till 6.30am but I had only just got to sleep because my neck was very painful. Yesterday I tore a muscle in my neck while running after Frost in the park. I can't rotate or look up and this makes rolling over in bed very sore. I am walking like a robot and rotating from the waist. Ouch.
The night is over. Its morning and we are all awake except Josh who will sleep till noon to recover from the vacation of early risings and all those animal intruders overnight.
Thursday, July 17, 2008
Pastries, diggers and arcades
Today we split up and Josh took Frost to movies (Hellboy) and arcade in Seaside while Wren napped and then went on a walk with me to do some shopping and exploring. We were lucky enough to find some road works and building going on and spent a while watching a forklift and skid-steer carrying construction materials about. A larger excavator had left its bucket by the road and I told Wren he could get inside. Here is a picture of him with his favorite toy - the "tongs" we found in the kitchen of the rental house. He and Frost have tong wars in the afternoons and he likes to walk around the house and alternatively pick up toys and pinch the family with them. Frost is particularly satisfying because he runs away screaming when Wren comes to "pinch" him.

Outside the grocery store there was a mechanical horse which Wren noticed and wanted to ride. Here is is looking serious as he clings to the 'neigh'. Unfortunately, a car alarm started to go off before the horse stopped bucking from our quarter, so we had to rush inside and do our shopping. Wren chose some corn and an apple. I chose a chocolate bar.

Frost had a fabulous time at the arcade. He is collecting quarters from all the States and found a few new ones. However, the highlight of his time at the arcade was when he was playing a torpedo shooting video game and by a pure stroke of luck struck the fast moving rainbow coloured ship which triggered the jackpot of 106 tickets. He loves to tell this story in almost unintelligible detail bubbling over with excitement. He spent his ticket bonanza on candy.
This evening he asked to go to sleep early because he wants to wake up early on his birthday Eve (tomorrow). I mentioned I might let him open one present on his Birthday Eve because we will be traveling home on his birthday on Friday. This has now evolved into 'A Promise' and he is hoping to nag me to make it a Birthday Eve Morning gift instead.
We shall see.
Outside the grocery store there was a mechanical horse which Wren noticed and wanted to ride. Here is is looking serious as he clings to the 'neigh'. Unfortunately, a car alarm started to go off before the horse stopped bucking from our quarter, so we had to rush inside and do our shopping. Wren chose some corn and an apple. I chose a chocolate bar.
Frost had a fabulous time at the arcade. He is collecting quarters from all the States and found a few new ones. However, the highlight of his time at the arcade was when he was playing a torpedo shooting video game and by a pure stroke of luck struck the fast moving rainbow coloured ship which triggered the jackpot of 106 tickets. He loves to tell this story in almost unintelligible detail bubbling over with excitement. He spent his ticket bonanza on candy.
This evening he asked to go to sleep early because he wants to wake up early on his birthday Eve (tomorrow). I mentioned I might let him open one present on his Birthday Eve because we will be traveling home on his birthday on Friday. This has now evolved into 'A Promise' and he is hoping to nag me to make it a Birthday Eve Morning gift instead.
We shall see.
Wednesday, July 16, 2008
Up to his neck in it
Today Frost received his wish to be buried up to his neck in sand. For some reason this was an idea he has been nurturing for a while. We went for a short hike through the Sitke Spruce forest of Oswald West State Forest down to Sand Cove beach. It was another brilliantly blue-skied day with a hot sun and a cool breeze.
The cove is very popular with surfers and boogy-boarders and I enjoyed peaking at the hot bods and trendy gear of the sub-culture while shepherding Wren and Frost around the beach. Wren was afraid of seagulls (which he calls "eagles"). He kept yelling out "EAGLE!" and running towards my safety crying when seagulls landed nearby to beg for scraps.
Frost loves being in the water, no matter how cold, and waded and splashed in both river and surf despite the icy temperatures and cold wind. He deeply appreciated his fleece when it was time to walk home.
Anyway, here is the picture of Frost being buried in the sand and Wren enjoying the chance to drop sand in his face without retaliation.

The cove is very popular with surfers and boogy-boarders and I enjoyed peaking at the hot bods and trendy gear of the sub-culture while shepherding Wren and Frost around the beach. Wren was afraid of seagulls (which he calls "eagles"). He kept yelling out "EAGLE!" and running towards my safety crying when seagulls landed nearby to beg for scraps.
Frost loves being in the water, no matter how cold, and waded and splashed in both river and surf despite the icy temperatures and cold wind. He deeply appreciated his fleece when it was time to walk home.
Anyway, here is the picture of Frost being buried in the sand and Wren enjoying the chance to drop sand in his face without retaliation.
Manzanita Monday
Manzanita, Oregon
This week we are staying in Manzanita, Oregon. We have a vacation rental within walking distance of the beach and after a long drive down here yesterday (I suggested a short cut and will not say more) we have enjoyed settling in. The house is very comfortable with three bedrooms close together so each kiddo has their 'own' room. Frost didn't like the squeaking of his antique spring bed so he slept on the floor on the duvet.
Wren also slept well last night and so he and Frost woke at almost the same time which is unheard of (Wren was up twice before then, but that doesn't count).
I was keen to get out so after a quick breakfast of wicked vacation cereal we were the first family on the beach. At 7.45am it is populated by dogs and their walkers with the occasional retired couple striding purposefully along. The beach was absolutely still which was a contrast from yesterday evening when the sea was covered in white horses and kite-surfers jumping the waves. It was so windy last night that we decided not to set foot on the sand.
Anyway, this morning was warm with a slight chill and we had a fabulous hour and half building sand castles and a driftwood fort which included a 'tree' which Wren climbed.

Wren climbing the 'tree'.
Both boys were exuberant to reach the sand and spent 10 minutes running around and throwing themselves down in the powdery fine sand. At first, Wren was a bit anxious. He said "scared, big" and "no no, home" and then when he felt the sand announced it was "cold, snow".

Running and falling.
The sand was very cold at first, much colder than the air, but the sea was far out with a wide flat beach to run around with islands of soft powdery sand where the water had not reached.
Later, we drove to Tillamook and ate icecream at the cheese factory. Wren ate many blocks of cheese samples and we did some grocery shopping.
I think that we will go down early tomorrow again and spend more time on the beach with Josh.
Here are a few pictures of the log 'boat/fort' and the sand castle.


This week we are staying in Manzanita, Oregon. We have a vacation rental within walking distance of the beach and after a long drive down here yesterday (I suggested a short cut and will not say more) we have enjoyed settling in. The house is very comfortable with three bedrooms close together so each kiddo has their 'own' room. Frost didn't like the squeaking of his antique spring bed so he slept on the floor on the duvet.
Wren also slept well last night and so he and Frost woke at almost the same time which is unheard of (Wren was up twice before then, but that doesn't count).
I was keen to get out so after a quick breakfast of wicked vacation cereal we were the first family on the beach. At 7.45am it is populated by dogs and their walkers with the occasional retired couple striding purposefully along. The beach was absolutely still which was a contrast from yesterday evening when the sea was covered in white horses and kite-surfers jumping the waves. It was so windy last night that we decided not to set foot on the sand.
Anyway, this morning was warm with a slight chill and we had a fabulous hour and half building sand castles and a driftwood fort which included a 'tree' which Wren climbed.
Wren climbing the 'tree'.
Both boys were exuberant to reach the sand and spent 10 minutes running around and throwing themselves down in the powdery fine sand. At first, Wren was a bit anxious. He said "scared, big" and "no no, home" and then when he felt the sand announced it was "cold, snow".
Running and falling.
The sand was very cold at first, much colder than the air, but the sea was far out with a wide flat beach to run around with islands of soft powdery sand where the water had not reached.
Later, we drove to Tillamook and ate icecream at the cheese factory. Wren ate many blocks of cheese samples and we did some grocery shopping.
I think that we will go down early tomorrow again and spend more time on the beach with Josh.
Here are a few pictures of the log 'boat/fort' and the sand castle.
Saturday, July 12, 2008
Relationship Economics for 6 Year Olds
This morning at breakfast Frost announced he needed to invite X to his party too. Now X is not someone with whom he is friends. They have never had a playdate. I wondered why?
"Because he always gives money for birthday presents. He gave D $20 and I need $45 to give Alex."
Uh oh, I think, but I act nochalant so I don't scare off this candour.
"Why do you need to give Alex $45?"
"To join his club"
"What's the club called?"
"Well, actually, its TEN CLUBS. First, he said I had to pay him $10 to join his club. Then he said it would be $20 for a few clubs. Then he said $45 for 10 clubs."
"What do you do in the clubs?"
"I dunno. Like, have fun. Do spy stuff. Parker is in the club. Alex said Parker gave him $50 to be in the club. Maybe Rowan is in the clubs too."
"Oh, I see. Can't you be in the club free? Most kids make clubs free?"
"No, Alex says I have to pay him that money so I need money for my birthday?"
"So, if I give you $50 you'll give it to Alex?" [I am still incredulous at my child's credulity]
[Frost senses a trap]
"Well, maybe not."
"Why don't you start a club yourself with Elias?"
"YES! Then I can charge Alex $50 to join!"
"Or, you can make your club free but tell him that you should be in his club free too."
"Yeah... maybe" [Frost is not convinced Alex will buy this deal.]
I leave it there. One day I shall have to explain the term entrepreneur. Meanwhile, I am wondering how to set up a trust fund to prevent Frost giving Alex all his savings when he turns 18.
"Because he always gives money for birthday presents. He gave D $20 and I need $45 to give Alex."
Uh oh, I think, but I act nochalant so I don't scare off this candour.
"Why do you need to give Alex $45?"
"To join his club"
"What's the club called?"
"Well, actually, its TEN CLUBS. First, he said I had to pay him $10 to join his club. Then he said it would be $20 for a few clubs. Then he said $45 for 10 clubs."
"What do you do in the clubs?"
"I dunno. Like, have fun. Do spy stuff. Parker is in the club. Alex said Parker gave him $50 to be in the club. Maybe Rowan is in the clubs too."
"Oh, I see. Can't you be in the club free? Most kids make clubs free?"
"No, Alex says I have to pay him that money so I need money for my birthday?"
"So, if I give you $50 you'll give it to Alex?" [I am still incredulous at my child's credulity]
[Frost senses a trap]
"Well, maybe not."
"Why don't you start a club yourself with Elias?"
"YES! Then I can charge Alex $50 to join!"
"Or, you can make your club free but tell him that you should be in his club free too."
"Yeah... maybe" [Frost is not convinced Alex will buy this deal.]
I leave it there. One day I shall have to explain the term entrepreneur. Meanwhile, I am wondering how to set up a trust fund to prevent Frost giving Alex all his savings when he turns 18.
Thursday, July 10, 2008
Remlinger Farm
Yesterday we visited Remlinger Farm and enjoyed the "Country Fair Family Park" which is open through September 21st this year. Wren loved "ride neigh" and "ride boat" and "ride train" as well as feeding sheep, goats and watching hungry bunnies.
Frost was very excited about it too and did all these activities with Wren.



It was hot and Wren was sweaty, more sweaty than other kids or Frost or me. I noticed he was sweaty after running a lot at baby soccer while none of the other kids broke a sweat. It just makes me feel more worried about him, that, and the news via the blog of another Shone's toddler that the surgery she had last year for sub-aortic stenosis is showing a recurrence of the obstruction. Apparently, her LV pressures are climbing and surgery is once again an option, possibly after the next checkup.
I need the facts but I also need the fuzzy hope that this will be the last surgery Wren needs and all memory of it will blur into the mists of time, happy times. Here are some happy times yesterday:
Frost was very excited about it too and did all these activities with Wren.
It was hot and Wren was sweaty, more sweaty than other kids or Frost or me. I noticed he was sweaty after running a lot at baby soccer while none of the other kids broke a sweat. It just makes me feel more worried about him, that, and the news via the blog of another Shone's toddler that the surgery she had last year for sub-aortic stenosis is showing a recurrence of the obstruction. Apparently, her LV pressures are climbing and surgery is once again an option, possibly after the next checkup.
I need the facts but I also need the fuzzy hope that this will be the last surgery Wren needs and all memory of it will blur into the mists of time, happy times. Here are some happy times yesterday:
Wednesday, July 9, 2008
Frustration
These days Wren is prolifically verbal. I can't keep up with his list of words because he can copy virtually every word even though he may not recall the word to use it for a couple of days. Yesterday and today he surprised me with these phrases:
"MY burger!" (as we approached the window at Dicks to order burgers. Of course, he received his own burger to help with his mild anemia. and ate half of it.)
"Cold warm coat!" (on opening the back door at 6am and finding it very cold. I returned with a coat and he seemed almost surprised at his success, repeating "coat, warm" a few times as I put it on.)
"Taste toast!" (when I served Frost toast for breakfast but not Wren.)
Along with his newfound conversational imperatives has come an intense frustration. Half the day Wren is hooting a fierce, loud noise which means he is very frustrated and wants the toy, the brother, the mother or the world to behave differently - as he wants.
[Right now, Wren cries "bonk head" because he has bonked on the table leg as he attempts to climb up me. The moment I do something other than him he comes and demands "more muk" and goes to sit on the couch to wait for me with loud shouting and forced cries.]
Here is a picture of Wren captured in a frustrated hoot as the Duplo blocks fail to connect as he intended.

Yesterday, other moments of complaint included when the pile of river rocks he was making toppled over, when the bugs wouldn't fit in the box, when the animal cards fell out of the tub, when Frost wouldn't let him play with his toys... etc.
"MY burger!" (as we approached the window at Dicks to order burgers. Of course, he received his own burger to help with his mild anemia. and ate half of it.)
"Cold warm coat!" (on opening the back door at 6am and finding it very cold. I returned with a coat and he seemed almost surprised at his success, repeating "coat, warm" a few times as I put it on.)
"Taste toast!" (when I served Frost toast for breakfast but not Wren.)
Along with his newfound conversational imperatives has come an intense frustration. Half the day Wren is hooting a fierce, loud noise which means he is very frustrated and wants the toy, the brother, the mother or the world to behave differently - as he wants.
[Right now, Wren cries "bonk head" because he has bonked on the table leg as he attempts to climb up me. The moment I do something other than him he comes and demands "more muk" and goes to sit on the couch to wait for me with loud shouting and forced cries.]
Here is a picture of Wren captured in a frustrated hoot as the Duplo blocks fail to connect as he intended.
Yesterday, other moments of complaint included when the pile of river rocks he was making toppled over, when the bugs wouldn't fit in the box, when the animal cards fell out of the tub, when Frost wouldn't let him play with his toys... etc.
Monday, July 7, 2008
The Holiday Weekend
I bet this is not something a parent often says but "I didn't buy enough fireworks." Frost was exuberantly excited about them and managed to wait until 4pm. However, the fireworks I had allowed him did not last as long as his passion. Here he is leaping with energy while watching a blue smoke bomb. Before Josh started to light them, Frost lined them up along the deck in order of appearance. Thankfully, it will be dark earlier for new year's eve and my largesses will be better appreciated.

The other big theme of the weekend was SNAILS. A couple of weeks ago I planted a second batch of beans and some squash starts. Our first batch of beans which Joshua grew from seed were all decimated by snails from a few days after germination until they grew 5" tall. Only 2 survived. This time, I decided to barricade them with inverted soda bottles which I topped and tailed and gave a crenelated border to discourage snailvaders.
The method lasted about a week before the first silver trail and missing leaves announced the offensive. One sunflower and one bean were eaten bare (and the sunflower, beheaded 2" from the ground, before I decided to start stomping on snails. Wren noticed my obsession with snails and enjoys our morning snail hunts. Here are a couple of pictures of Wren on the driveway and pointing out a snail on the wall, which is where they congregate in the hundreds after a rain.


On Sunday, Wren came outside in barefeet and started stomping on snails. Clearly, this was a problem. Plus, as Joshua pointed out, I would have to squash hundreds and hundreds to save a few plants. My first Plan B was to capture lots of snails. Here are the prisoners getting rowdy. Frost was very agitated by the capture and Wren was thrilled. He found he could pick up snails and put them against things and they stuck. He said "on" and then pulled them "off" and put them "in" the cup again. Needless to say, many escaped and the rest of them went into a hardy shrub by the curb. Lauren said she puts them in the yard waste but I couldn't bring myself to do that either.

Our final plan is Sluggo. This stuff is sold for "organic gardening" but I don't think its really in the spirit of organics. It is some naturally occuring iron compound which is delicious to snails but makes them stop eating and starve to death. Frost overheard Josh reading that "the dead snails may not be visible because they may move away into a hidden area to die". Josh and I exclaimed that this sounded awful and Frost is very upset about it. But after another bean plant was eaten to death overnight I have no mercy left. We are now sluggoed and the rate of eating has not stopped, but was much diminished last night.
Wren's Health Update
Wren's fever subsided on Saturday and aside from some unexplained sad wakings at night, he seems back to his usual state of health. He is waking at 5am thesedays but I am doing OK thanks to my naturopath prescribed licorice potion.
I spoke with his doctor today and she mentioned that Wren's platelets are not as low as I thought Thursday. They are actually at 185 (base of low range is 150). Still, I have been giving him broccoli potato soup and oatmeal and am planning on some lamb tonight to help get his iron and vitamin K up.
He is also going to start on a mild iron supplement.
Yesterday I went to our monthly Heart to Heart Support group held at Childrens' Hospital. Usually, the meeting is reassuring but this time I came away with concerns about inexperienced interns (apparently it is inadvisable to be in a teaching hospital in July because the new crop of graduates comes on June 25th lacking experience). Also, problems with weekend staffing and intensivist shortages.
As if the mere procedure isn't enough. Argh.
Today we are going on a school playdate to a local wading pool playground.
The other big theme of the weekend was SNAILS. A couple of weeks ago I planted a second batch of beans and some squash starts. Our first batch of beans which Joshua grew from seed were all decimated by snails from a few days after germination until they grew 5" tall. Only 2 survived. This time, I decided to barricade them with inverted soda bottles which I topped and tailed and gave a crenelated border to discourage snailvaders.
The method lasted about a week before the first silver trail and missing leaves announced the offensive. One sunflower and one bean were eaten bare (and the sunflower, beheaded 2" from the ground, before I decided to start stomping on snails. Wren noticed my obsession with snails and enjoys our morning snail hunts. Here are a couple of pictures of Wren on the driveway and pointing out a snail on the wall, which is where they congregate in the hundreds after a rain.
On Sunday, Wren came outside in barefeet and started stomping on snails. Clearly, this was a problem. Plus, as Joshua pointed out, I would have to squash hundreds and hundreds to save a few plants. My first Plan B was to capture lots of snails. Here are the prisoners getting rowdy. Frost was very agitated by the capture and Wren was thrilled. He found he could pick up snails and put them against things and they stuck. He said "on" and then pulled them "off" and put them "in" the cup again. Needless to say, many escaped and the rest of them went into a hardy shrub by the curb. Lauren said she puts them in the yard waste but I couldn't bring myself to do that either.
Our final plan is Sluggo. This stuff is sold for "organic gardening" but I don't think its really in the spirit of organics. It is some naturally occuring iron compound which is delicious to snails but makes them stop eating and starve to death. Frost overheard Josh reading that "the dead snails may not be visible because they may move away into a hidden area to die". Josh and I exclaimed that this sounded awful and Frost is very upset about it. But after another bean plant was eaten to death overnight I have no mercy left. We are now sluggoed and the rate of eating has not stopped, but was much diminished last night.
Wren's Health Update
Wren's fever subsided on Saturday and aside from some unexplained sad wakings at night, he seems back to his usual state of health. He is waking at 5am thesedays but I am doing OK thanks to my naturopath prescribed licorice potion.
I spoke with his doctor today and she mentioned that Wren's platelets are not as low as I thought Thursday. They are actually at 185 (base of low range is 150). Still, I have been giving him broccoli potato soup and oatmeal and am planning on some lamb tonight to help get his iron and vitamin K up.
He is also going to start on a mild iron supplement.
Yesterday I went to our monthly Heart to Heart Support group held at Childrens' Hospital. Usually, the meeting is reassuring but this time I came away with concerns about inexperienced interns (apparently it is inadvisable to be in a teaching hospital in July because the new crop of graduates comes on June 25th lacking experience). Also, problems with weekend staffing and intensivist shortages.
As if the mere procedure isn't enough. Argh.
Today we are going on a school playdate to a local wading pool playground.
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