Echobaby

Frost has been growing shiitake mushrooms in his bedroom. Once they emerged they have grown very fast and on Friday night we ate some in so...

Wren enjoys paging through books that are not-for-kids. These are large, lavishly illustrated and heavy. It is easy for him to rip pages. ...

Wren had an echo and EKG today. The quick summary is that he looks good, 3 out of 4 of his heart obstructions / defects are stable / OK but...

Wren has a cardiology appointment tomorrow at 2pm. He will have an echo, EKG and clinic consult. We are hoping he is stable post surgery wi...

Last month a large gathering of parents from our CHD support group met with the Directors of our local Children's Hospital. The idea wa...

Wren and I went to the park yesterday. Yes, it had been raining all day. Yes, it was very windy. Yes, the slide was wet. All Wren wanted...

I staggered out into the kitchen at 5.45am to take my medicinal licorice [1] and some tea because my throat is still croaky in the morning. ...

In a previous post I mentioned I have been sick. I had a cold/cough/fever thing that really knocked me about. Today I am feeling better bu...

I run a Google Alert on Shone's Syndrome and its permutations. From time to time it throws up new articles and blogs with relevant info...

Wren has been playing Doctor and I am not sure how I feel about it. He likes to use the stethoscope (which we had for his G-tube placement)...