Echobaby

The moment Wren arrived home he started rushing around. He is still wobbly on his feet and tender if he makes upward motions with his arms....

reminded me. While walking around 3 West I saw this photo of Drew on the notice board! We are home! We have been playing in the garden. U...

Spend any significant time in a hospital and you'll get used to 'hospital time'.  If some procedure or appointment is scheduled ...

Wow, things are really speeding up. I have left Josh at the hospital and we are all systems go for discharge. So far: 1) Peeing is resolve...

The pee issue continues. Wren received lasix (PO) at 8pm last night but has not yet pee'ed more than 7g. I keep poking his diaper anxi...

Until now, arriving at Wren's bedside when he is still trying to sleep, I haven't had time to write about all those other aspects of...

This recovery stuff can drive you crazy. Today, Wren has been happy and there was lots of progress [pacer wires out. Last IV out] but ther...

During Wren's full post-op echo this morning I was able to see the outflow tract area for the first time. It is amazing! Where there w...

Post-op, I forgot to ask whether all or just part of Wren's thymus was removed. Thymus removal is necessary to access the heart. In ch...

I spoke to the NP about Wren's EKG concerns and learned that they had done another EKG this afternoon. We are waiting for the Felllow a...